"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
Our community is at the heart of our work. Read our blogs to find out more about the many aspects of a journey with Duchenne muscular dystrophy directly from those who are living it.
Have you got a story to tell? We’d love to share it – please get in touch to find out more: lizzie.cox@actionduchenne.org

October 5, 2020 by Lynnette
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More

September 16, 2020 by Samantha
There were times when we thought it might not happen, back in June when we had to postpone it and during the ride when we woke up on Saturday morning, …

September 9, 2020 by Samantha
We are proud to share Matt's story as he raises money for Action Duchenne throughout September with our very own Angela Stringer's son Jonathan in his …

September 4, 2020 by Lynnette
A message from the National Director, Florence Boulton This week and next, many of our families are feeling a mix of emotions, as they send their …

August 10, 2020 by Samantha
Maggie and Maria are two wonderful volunteers who have shaken their buckets at collections, cheered at various events, as well helping at our …

July 28, 2020 by Lynnette
A message from the National Director, Florence Boulton At the start of what would normally be the season for summer ‘holidays’, my thoughts go to …

July 23, 2020 by Samantha
By Dan Miller Whilst lockdown may be easing with some venues reopening, restrictions are still in place and so it remains a challenge to visit many …

July 8, 2020 by Samantha
A very special thank you to Eddie Curtis, 14, who bravely gave a presentation to 700 pupils at his school about Duchenne muscular dystrophy, and the …
Thank you to the staff and pupils at Immanuel CollegeRead More

July 7, 2020 by Samantha
Eimear is just 15 years old, she lives at home with her parents Deborah and Kevin, and siblings Oran 18, Ciara 17 and Niall who lives with Duchenne …

July 7, 2020 by Samantha
Sam's kind hearted, generous and thoughtful nature shines through everything he does to support us and our work. Inspired by his good friend Toby …
Shining a spotlight on Sam Heathcote – a very special young fundraiserRead More

July 7, 2020 by Samantha
We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, …

June 29, 2020 by Lynnette
A message from the National Director, Florence Boulton Lock-down has been a time of grief for many, losing loved ones at a time when we are unable …
Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD
07535 498 506
info@actionduchenne.org
