Hear From Our Community

Join National Director Florence Boulton as part of our Vitality London 10,000 Team!

June 20, 2023 by Lizzie Cox

Join National Director Florence Boulton as part of our Vitality London 10,000 Team! On September 24th 2023, the hugely popular Vitality London …

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RAF Falcon Sgt Doug McAll to lift the weight of a C130J Hercules

June 15, 2023 by Victoria Edwards

On Friday 30th June 2023 I will be lifting the weight of a C130J Hercules aircraft (34,270kg) by deadlifting 100kg for 343 reps in as fast a time as …

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Join our At Home Superheroes!

June 15, 2023 by Lizzie Cox

Join our At Home Superheroes! Ivelina, mum of Presian ( 5 year old DMD hero ), tells us what motivated her family to sign up for the Superheroes …

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Much more than altruism

June 7, 2023 by Lizzie Cox

Much more than altruism 1st - 7th June marks National Volunteers Week 2023. I began volunteering for Action Duchenne in 2019. My son Sebastian …

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June Runner Support Session

June 6, 2023 by Victoria Edwards

We had our first ever runner support session on Zoom on Monday 5th June at 7pm. Our runner support sessions are for people who have registered to …

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Jake’s 21st Birthday Bash

June 2, 2023 by Victoria Edwards

We want to say a big Thank you to the Ambler family for asking for donations to Action Duchenne in celebration of Jake's 21st Birthday. They raised …

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Fighting for the future

May 31, 2023 by Lizzie Cox

Fighting for the future While we continue our much needed day to day work supporting our families, I want to share with you the recent developments …

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“Making something positive out of something negative”

May 12, 2023 by Lizzie Cox

"Making something positive out of something negative" “We chose to support Action Duchenne because not only do they focus on research & …

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The story behind Ruth’s charity dinner dance

May 11, 2023 by Lizzie Cox

The story behind Ruth's charity dinner dance Ruth and Ian Taylor tell us about their journey with Duchenne so far in this inspiring interview. Ruth …

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Turning Point – a Mum’s Perspective

May 5, 2023 by Lizzie Cox

Lizzie Deeble, Action Duchenne Project Assistant and Duchenne Parent, shares the some of the challenges facing her son Sebastian at this stage of his …

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AD Champions take on London Landmarks Half Marathon

April 4, 2023 by Victoria Edwards

On Sunday 2nd April our seven AD Champions took to the streets of London to run the half marathon London Landmarks route. The weather was good - no …

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Lighter Days and Warmer Months

April 3, 2023 by Florence Boulton

Lighter Days and Warmer Months As we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and …

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