*This competition has now closed and we are making contact with our winner!* As a thank you for supporting us this year we are are giving you the …
There are two sets of scores, usually recorded in tables, that you may see on your children's clinic notes. If you are not sure what these mean please …
North Star Ambulatory Assessment (NSAA) and the Oxford ScaleRead More
This month has been a time for real reflection for millions of people across the UK, The Commonwealth and the entire world. The passing of Queen …
A blog about our amazing and official marathon finishers, Rody and Terrie. As Community Fundraising and Support Officer I support people who take …
We are pleased to announce the winner of our Halloween Hamper Competition is David Pitts! "My daughter Molly and her fiancée found out their son …
Blog written by Lizzie Deeble | Project Engagement & Support Assistant | Duchenne Mum Yes I Can is our pilot transition programme, put together …
Our Support and Community Fundraising Officer and Duchenne parent Victoria Young went into her children's school last week to give an assembly to …
Dr Jo Griffin is a parent carer, psychologist and researcher interested in the emotional wellbeing of parents of disabled children. Her book 'Day by …
Florence Boulton's blog - National Director World Duchenne Awareness day 2022 On the 7th September (7/9 a nod to 79 exons on the dystrophin …
Blog by Lynnette Ellison, Marketing & Support Officer | Duchenne Parent “All staff and volunteers can remove their hi-vis… the festival is now …
From 2-6 August groups of Action Duchenne volunteers donned their blue AD t-shirts, grabbed their collection buckets and took London Olympia by …
Blog by Florence Boulton, National Director Invitation to Action Duchenne International Conference 2022 ‘Educating, enabling and including’ is …
