Hear From Our Community

There are two sets of scores, usually recorded in tables, that you may see on your children's clinic notes. If you are not sure what these mean please …

North Star Ambulatory Assessment (NSAA) and the Oxford ScaleRead More

A blog about our amazing and official marathon finishers, Rody and Terrie. As Community Fundraising and Support Officer I support people who take …

London Marathon 2022Read More

We are pleased to announce the winner of our Halloween Hamper Competition is David Pitts! "My daughter Molly and her fiancée found out their son …

Halloween Hamper winner announced!Read More

Blog written by Lizzie Deeble | Project Engagement & Support Assistant | Duchenne Mum Yes I Can is our pilot transition programme, put together …

Yes I Can So Far……Read More

Our Support and Community Fundraising Officer and Duchenne parent Victoria Young went into her children's school last week to give an assembly to …

Thank you to Oakley C of E Combined SchoolRead More

Dr Jo Griffin is a parent carer, psychologist and researcher interested in the emotional wellbeing of parents of disabled children. Her book 'Day by …

Finding Hope after a diagnosis by Dr Jo GriffinRead More

Blog by Lynnette Ellison, Marketing & Support Officer | Duchenne Parent “All staff and volunteers can remove their hi-vis… the festival is now …

On the ground at the Great British Beer FestivalRead More

We had a fantastic time in Krakow through Enable Holidays. We stayed in Hotel WYSPIANSKI room 109. This was a fully accessible room with a massive …

Barrie, Christine and Stephen share their 5 days in Krakow with us.Read More