Hope and Determination on Rare Disease Day 2024 Today, 29th February 2024, marks Rare Disease Day. At Action Duchenne, we join with the global rare …
What are corticosteroids? Corticosteroids are a class of steroid hormones that includes glucocorticoids and mineralocorticoids. However, the term …
Written by Pilar Maestre I am Pilar, currently 22 years old, and I have lived most of my life in Spain, where I was born. Recently, I volunteered …
Resilience, care and transformation - end of year reflections from our CEO As we head towards the bustle and business of the festive season, I am …
Resilience, care and transformation – end of year reflections from our CEO Read More
Advocacy and Campaigns: using our experience, voice and resources to make change happen Written by Kathy Wedell We are pleased to introduce …
Advocacy and Campaigns: using our experience, voice and resources to make change happenRead More
Creating a Shared Vision for Our Duchenne Community - Reflections and Thanks Wow, what an amazing two days we have had together at our Annual …
Creating a Shared Vision for Our Duchenne Community – Reflections and ThanksRead More
The strength of our community As we move towards the last few months of the year, I am so proud of the hard work that is coming to fruition. When …
My experience as a mentor on the Yes, I Can Residential Weekend A blog by Benjamin James Recently, I was asked by Action Duchenne to be a mentor …
My experience as a mentor on the Yes, I Can Residential WeekendRead More
Duchenne from the sidelines, a sibling perspective Written by Logan Kaye, Duchenne sibling Whenever you hear about a family who has been …
Supporting families with science It's already been 8 months since I joined Action Duchenne as a Science Communications Coordinator – a journey …
A Postcard from Florence Florence joined a group of young people and their parents and carers at the Calvert Trust in Exmoor over the August bank …
We had our second runner support session on Zoom on Thursday 13th July at 7pm. Unfortunately no one was able to attend so we did not record the …
