Hear From Our Community

“Making something positive out of something negative”

12 May 2023 by Lizzie Cox

"Making something positive out of something negative" “We chose to support Action Duchenne because not only do they focus on research & …

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The story behind Ruth’s charity dinner dance

11 May 2023 by Lizzie Cox

The story behind Ruth's charity dinner dance Ruth and Ian Taylor tell us about their journey with Duchenne so far in this inspiring interview. Ruth …

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Turning Point – a Mum’s Perspective

5 May 2023 by Lizzie Cox

Lizzie Deeble, Action Duchenne Project Assistant and Duchenne Parent, shares the some of the challenges facing her son Sebastian at this stage of his …

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AD Champions take on London Landmarks Half Marathon

4 April 2023 by Victoria Edwards

On Sunday 2nd April our seven AD Champions took to the streets of London to run the half marathon London Landmarks route. The weather was good - no …

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Lighter Days and Warmer Months

3 April 2023 by Florence Boulton

Lighter Days and Warmer Months As we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and …

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Continuing to come together

10 March 2023 by Florence Boulton

Continuing to come together 2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …

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An overview of Translarna

22 February 2023 by Lizzie Cox

Translarna (ataluren) is the first licensed treatment for an underlying genetic cause of Duchenne muscular dystrophy. It has been designed to target a …

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Starting 2023 with hope

2 February 2023 by Lizzie Cox

Starting 2023 with hope I want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive …

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2023 is the year of the half marathon and family friendly, fully inclusive events!

19 January 2023 by Victoria Edwards

It’s been a busy few months building our 2023 Events Fundraising challenges. It’s set to be an amazing year, with so many amazing individuals signing …

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