The story behind Ruth's charity dinner dance Ruth and Ian Taylor tell us about their journey with Duchenne so far in this inspiring interview. Ruth …
Lizzie Deeble, Action Duchenne Project Assistant and Duchenne Parent, shares the some of the challenges facing her son Sebastian at this stage of his …
On Sunday 2nd April our seven AD Champions took to the streets of London to run the half marathon London Landmarks route. The weather was good - no …
AD Champions take on London Landmarks Half MarathonRead More
Lighter Days and Warmer Months As we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and …
Continuing to come together 2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …
Translarna (ataluren) is the first licensed treatment for an underlying genetic cause of Duchenne muscular dystrophy. It has been designed to target a …
Starting 2023 with hope I want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive …
It’s been a busy few months building our 2023 Events Fundraising challenges. It’s set to be an amazing year, with so many amazing individuals signing …
2023 is the year of the half marathon and family friendly, fully inclusive events!Read More
A blog by Florence, National Director As we move toward the end of 2022, I’ve been looking back on the year we've had and reflecting on both the …
More than Hanging Out Blog by Jess Breeze, Programme Assistant When I spent an amazing day with the Sporting Bears on 19th March, (see blog here …
by Julia Marren, Duchenne parent to Lucas and Charlie We’ve never taken the boys abroad before; I was excited but worried. How would the boys cope …
International Conference and Community Blog by Florence, National Director Hello everyone! I am glad to be back sharing with you my updates …
