Continuing to come together 2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …
Translarna (ataluren) is the first licensed treatment for an underlying genetic cause of Duchenne muscular dystrophy. It has been designed to target a …
Starting 2023 with hope I want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive …
It’s been a busy few months building our 2023 Events Fundraising challenges. It’s set to be an amazing year, with so many amazing individuals signing …
2023 is the year of the half marathon and family friendly, fully inclusive events!Read More
A blog by Florence, National Director As we move toward the end of 2022, I’ve been looking back on the year we've had and reflecting on both the …
More than Hanging Out Blog by Jess Breeze, Programme Assistant When I spent an amazing day with the Sporting Bears on 19th March, (see blog here …
by Julia Marren, Duchenne parent to Lucas and Charlie We’ve never taken the boys abroad before; I was excited but worried. How would the boys cope …
International Conference and Community Blog by Florence, National Director Hello everyone! I am glad to be back sharing with you my updates …
*This competition has now closed and we are making contact with our winner!* As a thank you for supporting us this year we are are giving you the …
There are two sets of scores, usually recorded in tables, that you may see on your children's clinic notes. If you are not sure what these mean please …
North Star Ambulatory Assessment (NSAA) and the Oxford ScaleRead More
This month has been a time for real reflection for millions of people across the UK, The Commonwealth and the entire world. The passing of Queen …
A blog about our amazing and official marathon finishers, Rody and Terrie. As Community Fundraising and Support Officer I support people who take …
