Our Support and Community Fundraising Officer and Duchenne parent Victoria Young went into her children's school last week to give an assembly to …
Finding Hope after a diagnosis by Dr Jo Griffin
Dr Jo Griffin is a parent carer, psychologist and researcher interested in the emotional wellbeing of parents of disabled children. Her book 'Day by …
Exciting announcements
Florence Boulton's blog - National DirectorWorld Duchenne Awareness day 2022On the 7th September (7/9 a nod to 79 exons on the dystrophin gene) we are …
On the ground at the Great British Beer Festival
Blog by Lynnette Ellison, Marketing & Support Officer | Duchenne Parent“All staff and volunteers can remove their hi-vis… the festival is now …
The CAMRA Great British Beer Festival
From 2-6 August groups of Action Duchenne volunteers donned their blue AD t-shirts, grabbed their collection buckets and took London Olympia by …
Capturing highs and lows
Blog by Florence Boulton, National DirectorInvitation to Action Duchenne International Conference 2022‘Educating, enabling and including’ is the theme …
Barrie, Christine and Stephen share their 5 days in Krakow with us.
We had a fantastic time in Krakow through Enable Holidays. We stayed in Hotel WYSPIANSKI room 109. This was a fully accessible room with a massive …
Barrie, Christine and Stephen share their 5 days in Krakow with us.Read More
Insights from a Duchenne Grandad
Recorded at Science on Tour 2022 in Manchester.More about the workshopsThe Duchenne Science on Tour events are engaging, informal, free workshops, …
A postcard from Florence
This past fortnight, Florence, our National Director has joined Mehreen and Alex at the Science on Tour workshops in Birmingham and Newcastle. It's …
Seizing control empowering adults by transforming transition
Blog by Florence Boulton, National DirectorLast week I had the opportunity to join our first session in the ‘Yes I can’ transition to adulthood …
Seizing control empowering adults by transforming transitionRead More
On the road with the Science on Tour
Wow! What an amazing 3 weeks it has been at the Duchenne Science on Tour 2022. We are officially 'on the road', travelling the country to visit the …
My Dad is..
This Father’s Day we want to acknowledge all of the amazing dads in our Duchenne community. We are celebrating the Duchenne dads in every and any …
