This article is written by Florence Boulton, National Director “We are all stronger, together” is a fantastic motto, but it’s even better when put …
Peer to peer support – Chloe and Lyndsey
This article is written by Duchenne parents Chloe and Lyndsey who were carefully matched by our Support team. Chloe In Jan 2021 we officially …
Peer-to-peer support – I don’t feel so alone anymore
This article is written by a Duchenne Mum, Vicki, about her experience with Action Duchenne’s peer-to-peer support. Hi my name is Vicki, I have an …
Peer-to-peer support – I don’t feel so alone anymoreRead More
Peer-to-peer support – meeting a fellow mom
This article is written by a Duchenne Mum, Ruth, about her experience with Action Duchenne's peer-to-peer support. When my son was diagnosed with …
DNACPR, choice and living life to the fullest
In 2021 Joshua graduated from UCLan with a first-class BA Hons in Film and Media Studies. He has created documentaries, films and is an avid …
Peer-to-peer support – feeling positive for the future
Article by Sarah | Duchenne Mum After my son was diagnosed last June I started following Action Duchenne on social media. I decided to join a Zoom …
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That word…Hospice
Article by Ashley Lawmon, Duchenne Mum If you're anything like me this word fills you with dread and fear. I put that conversation off for years! …
Limitations…
Article by Duchenne Mum Ashley Lawmon Who here has been told that your child won't do this and won't do that? Because I know I did. He won't jump, …
Another amazing day with the Sporting Bears
Article by Jess Breeze | Duchenne Mum | Volunteer On the 19th March I had the privilege to spend another day with the Sporting Bears. The …
2 Years and 26.2 Miles
Two years ago, a combination of 40th birthdays and "let's do it" had persuaded a group of us who run regularly together to attempt a marathon. We …
Big up the RAMS!
It is not everyday that we have a premier community football club show us their support, but on Saturday 26th March Beaconsfield Town FC (aka the …
Celebrating all Duchenne Mums
This Mother's Day we want to acknowledge all of the amazing mums in our Duchenne community. We are celebrating the Duchenne mums in every and any …
