Article by Jess Breeze | Duchenne Mum | Volunteer On the 19th March I had the privilege to spend another day with the Sporting Bears. The …
Two years ago, a combination of 40th birthdays and "let's do it" had persuaded a group of us who run regularly together to attempt a marathon. We …
It is not everyday that we have a premier community football club show us their support, but on Saturday 26th March Beaconsfield Town FC (aka the …
This Mother's Day we want to acknowledge all of the amazing mums in our Duchenne community. We are celebrating the Duchenne mums in every and any …
Over the past few weeks, we have been able to send 40 of our families a free copy of The Abilities in Me Duchenne muscular dystrophy book, thanks to …
Digby receives his copy of The Abilities in Me DMD BookRead More
A message from our National Director, Florence Boulton It was 2 years ago when I first joined my new team around a table in a meeting room in …
by Rebecca Smith SENCO/INCO Rebecca Smith oversees provision at St. Mary's Primary Academy in Cambridgeshire to ensure that all children within the …
Securing the right support for your child in schoolRead More
During Spring and Summer 2020, I personally spoke to over 2,000 Duchenne families, offering each of them bespoke care and support to suit their …
Article written by Jon Powton, Foster Carer Feeling relevant in a world where being different can feel like a crime is never an easy thing. Wearing …
This time last year, I was proudly clicking ‘share’ on the impact report for our 2020 Christmas Campaign. We’d sprinkled a touch of magic at a time …
Behind the scenes at Action Duchenne’s Santa’s GrottoRead More
This week, Duchenne family and long-standing Action Duchenne supporters, the O'Doherty's of Derry, Ireland announced they have raised an incredible …
Fundraising total announced for GP’s epic 362 mile runRead More
A message from our National Director, Florence Boulton Another year has flown by! A very Happy New Year to all my colleagues, partners, families …
