Over the past few weeks, we have been able to send 40 of our families a free copy of The Abilities in Me Duchenne muscular dystrophy book, thanks to …
Digby receives his copy of The Abilities in Me DMD BookRead More
Springing into action
A message from our National Director, Florence Boulton It was 2 years ago when I first joined my new team around a table in a meeting room in …
Securing the right support for your child in school
by Rebecca Smith SENCO/INCO Rebecca Smith oversees provision at St. Mary's Primary Academy in Cambridgeshire to ensure that all children within the …
Securing the right support for your child in schoolRead More
Friday Hive blog by Sam
During Spring and Summer 2020, I personally spoke to over 2,000 Duchenne families, offering each of them bespoke care and support to suit their …
Becoming a foster carer
Article written by Jon Powton, Foster Carer Feeling relevant in a world where being different can feel like a crime is never an easy thing. Wearing …
Behind the scenes at Action Duchenne’s Santa’s Grotto
This time last year, I was proudly clicking ‘share’ on the impact report for our 2020 Christmas Campaign. We’d sprinkled a touch of magic at a time …
Behind the scenes at Action Duchenne’s Santa’s GrottoRead More
Fundraising total announced for GP’s epic 362 mile run
This week, Duchenne family and long-standing Action Duchenne supporters, the O'Doherty's of Derry, Ireland announced they have raised an incredible …
Fundraising total announced for GP’s epic 362 mile runRead More
Farewell 2021, welcome 2022
A message from our National Director, Florence Boulton Another year has flown by! A very Happy New Year to all my colleagues, partners, families …
Long-standing Trustee launches charity album
ACTION Duchenne’s longest-serving Trustee, Mark Silverman, has today launched his lock-down inspired album ‘Markin’ Time’. Taking vocals for …
Indoor Skydive
This Christmas I wanted to make sure my son Dougie and his younger sister, Allie, were given the gift of an amazing experience. On Christmas Day they …
It’s Dip Time!
We want to say a big splashy thank you to Karen and her family for braving the sea on Boxing Day. Their continued support means so much to …
Happy Holidays from our National Director
It’s beginning to look a lot like Christmas! This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our …
