• International Conference - We invite 600 people from the global Duchenne and Becker community, including over 400 people living with Duchenne, their families and friends. Every year we welcome the top clinicians, pharmaceutical companies, researchers and specialists to present to our community, giving families the chance to ask questions and speak directly to the people at the forefront of research into a cure and treatments for the condition.
  • Practical resources - We continue to support the Accident and Emergency mobile phone app, alongside providing the Filofax pack. The app has been downloaded and used nearly 400 times this financial year.
  • Ground-breaking leaflets - In collaboration with the Principal Genetic Councellor, Addenbrooke’s Hospital, Cambridge we produced a ground-breaking leaflet ‘Being a Carrier for Duchenne Muscular Dystrophy’.
  • Information and support events - We fund and organise support and information days, along with hosting trips for families.
  • Education - Provide award winning education projects, Decipha and Takin' Charge for young people living with Duchenne.
  • Campaigning - We inform political debate in the fight to improve the quality of life for those living with Duchenne.
  • Support - On a daily basis, our experienced team speak and meet with families and offer them help and support throughout their journey.

Help us change the future