We’re hiring! Project Engagement & Support Coordinator

Action Duchenne knows that there is only one person who understands what a Duchenne parent is going through, and that is another Duchenne parent. The same applies to young people and adults living with Duchenne muscular dystrophy.

Overview

Focussing on the complete project life-cycle of a new, fully funded support projects, the Project Engagement & Support Coordinator will be responsible for all tasks involved in creating and growing groups for Duchenne Grandparents, Duchenne Parents/Caregivers, young people and adults living with Duchenne. 

Benefits

We offer a competitive salary, completely flexible working hours, home-working and an innovative and supportive working environment.

Why should you apply for the role of Project Engagement & Support Coordinator 

Young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges in their foreshortened lives. Our support is vital to thousands of young people, adults and families living with Duchenne. We developed our programmes in response to their needs and since 2017 we have been developing a sustainable, long-term funding model for this work. 

We work to achieve our vision by

• Supporting the Duchenne community – to bring people together to share their experiences and learn from each other.
• Working with the NHS to improve care and provide their patients with the earliest possible access to approved medicines.
• Funding research into potential therapeutic strategies for everybody living with Duchenne.
• Helping to create an inclusive society where everybody is equal and disability is accepted. 

You can play a vital role in tackling social isolation and increasing mental well-being through getting Duchenne families involved in our life-changing support projects.

About the role

This is an opportunity for you to make a significant contribution within our small yet vital patient organisation. Responsible to and supported by the central Community Fundraising & Support Officer, the Project Engagement & Support Coordinator will;

• Receive training and full support in order to fulfill your role including; stewardship, recruiting for events, managing online meetings, how to engage and support Duchenne families
• Work closely with Project Marketing & Support Coordinator, volunteers and the central Action Duchenne team
• Build on the existing project proposal to create a clear and achievable plan to engage beneficiaries, execute the peer-to-peer support groups, build momentum and expand the project
• Delivery and execution of your project plan, such as writing and hosting group webinars, inviting and recruiting attendees, liaising with speakers and stakeholders, hosting the online events
• Working with the Project Marketing & Support Coordinator to follow up, get feedback, recruit for focus groups for impact purposes 
• Create a legacy plan for the support groups to continue after initial 6 month period, including researching and writing bids for continued funding

Candidate specification

Essential criteria;

• A strong commitment to the work of Action Duchenne
• Flexible approach to working methods and service delivery, and a willingness to learn new skills
• An interest in engaging stakeholders 
• An understanding of the importance of supporting and empowering disabled people and their families
• Ability to work with a variety of groups e.g. Duchenne families and health and educational professionals
• Strong interpersonal and communication skills, demonstrating respect, empathy and positivity
• Diligent, methodical with exceptional attention to detail
• Good organisational skills
• The ability to work under pressure and to deadlines, managing and prioritising a demanding and diverse workload
• The ability to work in a transparent way, as part of a team

Desired criteria;

• Lived experience of Duchenne Muscular Dystrophy (ie as a person living with Duchenne, a parent/caregiver, sibling, or Grandparent)
• Experience in supporting people with disabilities
• Experience in working with teenagers and young adults
• Track record in igniting people’s interest in events, engaging stakeholders and making great things happen!

How to apply

Send your CV and cover letter to lynnette@actionduchenne.org, explaining why you are the best candidate for the Project Engagement & Support Coordinator role and what is your connection to Duchenne muscular dystrophy.

Application deadline 12th July.

Successful applicants will be invited to attend a face to face interview via Zoom on 15 or 16 July which will include a written task.