A big thank you and congratulations to new Duchenne parents Molly Pitts and Zak Denny who organised the hugely successful 'First Steps 7 mile walk' …
100km for Ellie, James and Action Duchenne
Matthew Deeming loves his running. This year he wanted to set his most ambitious goal yet by aiming to run the Northumberland Coastal Path in its …
Early heart medication
A blog by Lyndsey Kaye | Admin Volunteer | Duchenne Mum Thump-thump, thump-thump, thump-thump…. the sound of a heartbeat. It reassures us that …
‘Tyre-man’ Duchenne Dad faces the impossible
By Alexis Ellison | Duchenne Dad | serial fundraiser It is done! 24hrs and over 40miles pulling and carrying a 10kg tyre and chain.I'm really …
Duchenne Dad to pull tyre for 24 hours
A resounding good luck and thank you to serial fundraiser and Duchenne Dad, Lex Ellison who is taking part in the Endure 24 running challenge in Leeds …
Giving back in honour of Thomas
When Thomas was around 7 years old, Adam remembers him having his appendix out. Adam arranged for a card to be signed by the whole school to wish him …
Unfurling after the storm
Before I start my usual blog this month, I wanted to acknowledge a Duchenne family who have been through immeasurable devastation this week. On behalf …
Duchenne siblings, we see you
A blog by Lyndsey Kaye, Duchenne Mum "Today is my eldest son’s 15th birthday, and it has made me reflect somewhat and come to a bit of a …
Dad completes amazing endurance event challenge for Action Duchenne
Dan Brown has been running endurance events since January last year to raise money for Action Duchenne. On 5th June he completed his last endurance …
Dad completes amazing endurance event challenge for Action DuchenneRead More
Edinburgh Marathon ‘Running for a cure’
On Sunday 30th May Ian is running the Edinburgh Marathon for Action Duchenne. Ian has been inspired to run 26.2 miles after seeing the challenges …
Re-emerging from lockdown
by Florence, National Director The past 18 months in lockdown have been undoubtedly difficult for most and devastating for many. What has come out …
Edinburgh Marathon ‘Our run for Ben’
I took up running, as a kind of therapy, shortly after Ben died. I was kind of cajoled on by colleagues who had run the London Marathon in …
