Blog by Florence Boulton, National Director This month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …
Holidays after lockdown
A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …
I have so much to share with you
A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
LEGO Quest
Recognising the power of our community
A message from the National Director, Florence Boulton The past four weeks, since I last wrote to you all, has been a rollercoaster of extreme …
Webinar has life-changing impact on Duchenne family
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
We did it! Tour de Taylor Wimpey
There were times when we thought it might not happen, back in June when we had to postpone it and during the ride when we woke up on Saturday morning, …
Matt’s AVR Cycle September
We are proud to share Matt's story as he raises money for Action Duchenne throughout September with our very own Angela Stringer's son Jonathan in his …
Taking action and making an impact
A message from the National Director, Florence Boulton This week and next, many of our families are feeling a mix of emotions, as they send their …
Shining a spotlight on two very special ladies
Maggie and Maria are two wonderful volunteers who have shaken their buckets at collections, cheered at various events, as well helping at our …
Summer ‘holiday’ after lock-down
A message from the National Director, Florence Boulton At the start of what would normally be the season for summer ‘holidays’, my thoughts go to …
Accessing History in Lockdown
By Dan Miller Whilst lockdown may be easing with some venues reopening, restrictions are still in place and so it remains a challenge to visit many …
