March marked a special milestone at Action Duchenne as we kicked off our brand-new webinar series! Each month, we are diving deeper into the important …
School Support – Alex’s Blog
School Support - Alex's Blog Hear from Partnerships and Outreach Manager Alex Berbank about the support Action Duchenne can offer in schools. …
Spotlight on Dr David Schonfeld
Spotlight on Dr David Schonfeld Dr. David Schonfeld is a distinguished pediatrician and child development expert withover three decades of …
Five Years at Action Duchenne
Five Years at Action Duchenne This month marks five years since I joined the team at Action Duchenne, and it has been an incredible journey. From …
Reflections and Hope
As we approach the festive season and the end of 2024, I have been reflecting on a year filled with triumphs and challenges. It has been a time of …
Action Duchenne Selected for ‘Season of Soul’ Initiative by Jaguar Land Rover Solihull
Action Duchenne is deeply honoured to be chosen as one of the charities for JLR Solihull’s ‘Season of Soul’ initiative. Ian Taylor, a Duchenne dad and …
Action Duchenne Selected for ‘Season of Soul’ Initiative by Jaguar Land Rover SolihullRead More
Winter Wishes
Winter Wishes at Hyde Park On the 27th November, we were thrilled to offer complimentary tickets to 8 of our families to the Winter Wishes event at …
Educating, Connecting, Wellbeing at the Action Duchenne Annual International Conference 2024
Action Duchenne Annual International Conference 2024 was an unforgettable gathering of patients, families, experts, and supporters, all brought …
Help Develop Nutrition Information Resources for Duchenne Muscular Dystrophy
If you are a caregiver of/or a young person aged 7-25 with Duchenne, researchers from the University of Glasgow, and Edge Hill University, need your …
Help Develop Nutrition Information Resources for Duchenne Muscular DystrophyRead More
Welcoming Autumn 2024
As we transition from the warmth of summer to the crisp embrace of autumn, it’s a moment to reflect on our progress and the importance of community …
Help Improve Understanding of Nutrition and Weight Management in DMD
Do you have 15 minutes and want to help improve our scientific understanding of the influence of nutrition and weight management in Duchenne muscular …
Help Improve Understanding of Nutrition and Weight Management in DMDRead More
Welcoming Summer
Welcoming Summer It feels as though we have waited a while for warmer days this year and it is hard to believe that we are already over half way …
