Every year, Action Duchenne supports over 1000 families affected by the condition. The Covid-19 pandemic has impacted not only our fundraising efforts …
Vote for Action Duchenne in the Discount Promo Codes Charity PollRead More
Taking Raxone? We need your input!
The National Institute for Health and Care Excellence (NICE) is consulting on a potential new drug called Idebenone (or Raxone) which may slow …
The 2020 Action Duchenne International Conference Registration is now OPEN!
We are delighted to announce that our Action Duchenne International Conference 2020 (‘the Conference’) is now open for registration. The event …
The 2020 Action Duchenne International Conference Registration is now OPEN!Read More
Summer ‘holiday’ after lock-down
A message from the National Director, Florence Boulton At the start of what would normally be the season for summer ‘holidays’, my thoughts go to …
Impact of Aviva fundraising campaign
Thank you to everyone who supported our recent fundraising campaign through the Aviva Community Fund UK. We are delighted to let you know we …
Dr Shuko Joseph awarded the Lorber Prize
We are delighted to share the news that; Dr Shuko Joseph has won the Lorber Prize for best paediatric research paper for her work on growth and …
Patron backs Duchenne science project
Our Patron and hugely talented actress, Helena Bonham Carter is supporting our Aviva Community Fund project. I’m absolutely delighted to back this …
Open letter from Minister for Health, Northern Ireland
In May, we sent out letters directly to Prime Minister Boris Johnson, Secretaries of State for Health, Education and Work and Pensions, as …
Open letter from Minister for Health, Northern IrelandRead More
Thank you to the staff and pupils at Immanuel College
A very special thank you to Eddie Curtis, 14, who bravely gave a presentation to 700 pupils at his school about Duchenne muscular dystrophy, and the …
Thank you to the staff and pupils at Immanuel CollegeRead More
Remembering BJ Doherty
We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, …
Scottish Powerchair Football Association cheque presentation
Massive thanks to Action Duchenne for coming up to give us a donation, much appreciated and we hope you enjoy watching some Powerchair Football It …
Scottish Powerchair Football Association cheque presentationRead More
Cross Party Group meeting on Palliative Care
On 5 June 2019, Our Scottish Advocacy Officer John Miller attended the Cross Party Group meeting on Palliative Care. This meeting explored the …
