Have we got an exciting line up of speakers and sessions for you! We will be announcing more details over the coming days and weeks. But for …
World Duchenne Awareness Day 2020 was a success
Thank you to everyone who liked, shared and interacted with our #WDAD2020 posts on Monday! We joined the global Duchenne community to celebrate our …
Open letter from the Department for Education #weneedanswers
In May, we sent out letters directly to Prime Minister Boris Johnson, Secretaries of State for Health, Education and Work and Pensions, as …
Open letter from the Department for Education #weneedanswersRead More
Share your experiences to help others
As the Action Duchenne International Conference 2020 is virtual this year, we have the opportunity to do things a little differently! As well as an …
Vote for Action Duchenne in the Discount Promo Codes Charity Poll
Every year, Action Duchenne supports over 1000 families affected by the condition. The Covid-19 pandemic has impacted not only our fundraising efforts …
Vote for Action Duchenne in the Discount Promo Codes Charity PollRead More
Taking Raxone? We need your input!
The National Institute for Health and Care Excellence (NICE) is consulting on a potential new drug called Idebenone (or Raxone) which may slow …
The 2020 Action Duchenne International Conference Registration is now OPEN!
We are delighted to announce that our Action Duchenne International Conference 2020 (‘the Conference’) is now open for registration. The event …
The 2020 Action Duchenne International Conference Registration is now OPEN!Read More
Summer ‘holiday’ after lock-down
A message from the National Director, Florence Boulton At the start of what would normally be the season for summer ‘holidays’, my thoughts go to …
Impact of Aviva fundraising campaign
Thank you to everyone who supported our recent fundraising campaign through the Aviva Community Fund UK. We are delighted to let you know we …
Dr Shuko Joseph awarded the Lorber Prize
We are delighted to share the news that; Dr Shuko Joseph has won the Lorber Prize for best paediatric research paper for her work on growth and …
Patron backs Duchenne science project
Our Patron and hugely talented actress, Helena Bonham Carter is supporting our Aviva Community Fund project. I’m absolutely delighted to back this …
Open letter from Minister for Health, Northern Ireland
In May, we sent out letters directly to Prime Minister Boris Johnson, Secretaries of State for Health, Education and Work and Pensions, as …
Open letter from Minister for Health, Northern IrelandRead More
