In May, we launched our COVID-19 campaign #weneedanswers where we asked the Prime Minister, Secretaries of State for Health, Education and Work and …
Open letter from Deputy First Minister and Cabinet Secretary for Education and Skills
In May, we sent out letters directly to Prime Minister Boris Johnson, Secretaries of State for Health, Education and Work and Pensions, as …
Open letter from Deputy First Minister and Cabinet Secretary for Education and SkillsRead More
Open letter from Department of Education, Northern Ireland
In May, we sent out letters directly to Prime Minister Boris Johnson, Secretaries of State for Health, Education and Work and Pensions, as well as to …
Open letter from Department of Education, Northern IrelandRead More
Meeting with Genetic Alliance – COVID-19 information hub
We joined 21 other organisations at a meeting on 15 June, held by the Genetic Alliance UK. The aim of the meeting was to gather information to …
Meeting with Genetic Alliance – COVID-19 information hubRead More
#ADCONF20 announcement
We want to announce that the Action Duchenne International Conference will take place online this year. Following the Government's latest update, …
National charity launches campaign for COVID-19 answers
PRESS RELEASE Action Duchenne, the first national charity established to support those living with Duchenne muscular dystrophy (DMD), has launched …
National charity launches campaign for COVID-19 answersRead More
Open letter from the First Minister of Scotland
Advice for those Shielding Thank you for your email and attached letter of 18th of May to the First Minister regarding shielding advice for …
Take part in important survey
Impact of COVID-19 on transition planning for young people with additional support needs ARC Scotland, Lead …
Survey for individuals living with swallowing difficulties and neuromuscular disease
Do you live with a neuromuscular condition? Do you experience swallowing difficulties as part of your neuromuscular condition? If you answer …
Survey for individuals living with swallowing difficulties and neuromuscular diseaseRead More
The Vampires Diaries’ Kat Graham supports charity single
Musician, actress and producer, Kat Graham has congratulated Jonathon Inkin on the launch of his charity single 'Horizons'. In the beautiful …
The Vampires Diaries’ Kat Graham supports charity singleRead More
Support our campaign for COVID-19 answers
COVID-19 has deeply affected the families we support. Most people living with Duchenne muscular dystrophy have been classified as clinically …
North Eastern lad releases debut single
We are excited to share with you the debut single from the super talented, Newcastle lad Alex James. Being in a wheelchair performing is pretty …
