We want to announce that the Action Duchenne International Conference will take place online this year. Following the Government's latest update, …
National charity launches campaign for COVID-19 answers
PRESS RELEASE Action Duchenne, the first national charity established to support those living with Duchenne muscular dystrophy (DMD), has launched …
National charity launches campaign for COVID-19 answersRead More
Open letter from the First Minister of Scotland
Advice for those Shielding Thank you for your email and attached letter of 18th of May to the First Minister regarding shielding advice for …
Take part in important survey
Impact of COVID-19 on transition planning for young people with additional support needs ARC Scotland, Lead …
Survey for individuals living with swallowing difficulties and neuromuscular disease
Do you live with a neuromuscular condition? Do you experience swallowing difficulties as part of your neuromuscular condition? If you answer …
Survey for individuals living with swallowing difficulties and neuromuscular diseaseRead More
The Vampires Diaries’ Kat Graham supports charity single
Musician, actress and producer, Kat Graham has congratulated Jonathon Inkin on the launch of his charity single 'Horizons'. In the beautiful …
The Vampires Diaries’ Kat Graham supports charity singleRead More
Support our campaign for COVID-19 answers
COVID-19 has deeply affected the families we support. Most people living with Duchenne muscular dystrophy have been classified as clinically …
North Eastern lad releases debut single
We are excited to share with you the debut single from the super talented, Newcastle lad Alex James. Being in a wheelchair performing is pretty …
IMPaCCt Study – Investigating the impact of COVID-19 on Caregivers and patients.
Researchers at Queen’s University Belfast and University of Aberdeen are conducting an online international survey to gain an understanding of the …
IMPaCCt Study – Investigating the impact of COVID-19 on Caregivers and patients.Read More
Looking forward to meeting again
A message from the National Director, Florence Boulton It was a relief this weekend to hear the Prime Minister announce the start of a process for …
Translarna MAA COVID-19 update
Translarna can treat Duchenne caused by a nonsense mutation (about 10-13% of cases). The drug is available in England and Wales via a Managed Access …
Patron Martin Bashir backs fundraising single
We are incredibly excited to announce details of ‘Horizons’, an inspirational new song, recorded by Jonathon Inkin, a 21 year old living with Duchenne …
