Do you live with a neuromuscular condition? Do you experience swallowing difficulties as part of your neuromuscular condition? If you answer …
Survey for individuals living with swallowing difficulties and neuromuscular diseaseRead More
The Vampires Diaries’ Kat Graham supports charity single
Musician, actress and producer, Kat Graham has congratulated Jonathon Inkin on the launch of his charity single 'Horizons'. In the beautiful …
The Vampires Diaries’ Kat Graham supports charity singleRead More
Support our campaign for COVID-19 answers
COVID-19 has deeply affected the families we support. Most people living with Duchenne muscular dystrophy have been classified as clinically …
North Eastern lad releases debut single
We are excited to share with you the debut single from the super talented, Newcastle lad Alex James. Being in a wheelchair performing is pretty …
IMPaCCt Study – Investigating the impact of COVID-19 on Caregivers and patients.
Researchers at Queen’s University Belfast and University of Aberdeen are conducting an online international survey to gain an understanding of the …
IMPaCCt Study – Investigating the impact of COVID-19 on Caregivers and patients.Read More
Looking forward to meeting again
A message from the National Director, Florence Boulton It was a relief this weekend to hear the Prime Minister announce the start of a process for …
Translarna MAA COVID-19 update
Translarna can treat Duchenne caused by a nonsense mutation (about 10-13% of cases). The drug is available in England and Wales via a Managed Access …
Patron Martin Bashir backs fundraising single
We are incredibly excited to announce details of ‘Horizons’, an inspirational new song, recorded by Jonathon Inkin, a 21 year old living with Duchenne …
Short-term and one-off volunteer tasks available
No commitment needed, we'll use your skills to help make a difference. Have you been furloughed?Can you spare us a couple of hours?Don't want …
Scottish Parliment Members Debate – Scottish Powerchair Association
Wednesday 6th February 2019 saw another huge step in the development and progression of the Scottish Powerchair Football Association (SPFA). After …
Scottish Parliment Members Debate – Scottish Powerchair AssociationRead More
National Campaign – Save the UK’s Charities
The Covid-19 pandemic has had a catastrophic effect with the cancellation of thousands of events and the loss of billions in income through …
Helping you through COVID-19
Support and resources for our Duchenne community A message from the National Director, Florence Boulton With the impact of COVID-19 on our …
