Researchers at Queen’s University Belfast and University of Aberdeen are conducting an online international survey to gain an understanding of the …
IMPaCCt Study – Investigating the impact of COVID-19 on Caregivers and patients.Read More
Looking forward to meeting again
A message from the National Director, Florence Boulton It was a relief this weekend to hear the Prime Minister announce the start of a process for …
Translarna MAA COVID-19 update
Translarna can treat Duchenne caused by a nonsense mutation (about 10-13% of cases). The drug is available in England and Wales via a Managed Access …
Patron Martin Bashir backs fundraising single
We are incredibly excited to announce details of ‘Horizons’, an inspirational new song, recorded by Jonathon Inkin, a 21 year old living with Duchenne …
Short-term and one-off volunteer tasks available
No commitment needed, we'll use your skills to help make a difference. Have you been furloughed?Can you spare us a couple of hours?Don't want …
Scottish Parliment Members Debate – Scottish Powerchair Association
Wednesday 6th February 2019 saw another huge step in the development and progression of the Scottish Powerchair Football Association (SPFA). After …
Scottish Parliment Members Debate – Scottish Powerchair AssociationRead More
National Campaign – Save the UK’s Charities
The Covid-19 pandemic has had a catastrophic effect with the cancellation of thousands of events and the loss of billions in income through …
Helping you through COVID-19
Support and resources for our Duchenne community A message from the National Director, Florence Boulton With the impact of COVID-19 on our …
Virtual Bingo
We've got an easy way to run virtual bingo games as you and your friends cannot play together in person. It's free up to 30 players! Simply …
Supporting families – Lynnette’s perspective
In April 2016, 6 months after my son was diagnosed with Duchenne muscular dystrophy, I joined the Action Duchenne team. I felt I had to do something …
COVID-19: how you can help
The Covid-19 pandemic is having a huge impact on every area of our lives. Now, more than ever, our life-saving work becomes even more crucial …
Latest results from Solid gene therapy trial
Solid Biosciences have today released an update on their clinical trial of a gene therapy for Duchenne. The IGNITE DMD trial is an early …
