Join us on Saturday 11th May at 5pm for the next in our series of webinars. Dr Vasantha Gowda, consultant in paediatric neurology and neuromuscular …
Spring Webinar – Dr Vasantha Gowda ‘DMD and Emergencies’Read More
April 26, 2024 by Lizzie Deeble
Join us on Saturday 11th May at 5pm for the next in our series of webinars. Dr Vasantha Gowda, consultant in paediatric neurology and neuromuscular …
Spring Webinar – Dr Vasantha Gowda ‘DMD and Emergencies’Read More
April 26, 2024 by Lizzie Deeble
For anyone who missed the brilliant webinar hosted by Professor Annemeike Aartsma-Rus from 13th April 2024, this is the recording of her session. She …
April 26, 2024 by Lizzie Deeble
Andria Papageorgiou, postgraduate research student at The University of Surrey, is inviting you to take part in a 6 week programme for parents/carers …
Take part in a trial programme about behavioural and emotional difficultiesRead More
April 22, 2024 by Lizzie Deeble
Introducing Our Newest Trustee: Emma Simmonds “On behalf of the Board of Trustees at Action Duchenne, I extend a warm welcometo Emma as our newest …
April 19, 2024 by Lizzie Deeble
We decided our regular online support groups needed a bit of a re-think. To make sure we’ve got everyone covered, there are now going to be 4 …
April 1, 2024 by Lizzie Deeble
Action Duchenne are seeking Trustees (volunteer roles) Trustee Action Duchenne are currently searching for strong individuals to join the …
Action Duchenne are seeking Trustees (volunteer roles)Read More
April 1, 2024 by Lizzie Deeble
Action Duchenne is seeking a Chairperson (volunteer role) ChairpersonAction Duchenne are currently searching for a strong individual to guide and …
Action Duchenne is seeking a Chairperson (volunteer role)Read More
March 28, 2024 by John Marrin
We stand with the Duchenne community in expressing our disappointment regarding the National Institute for Health and Care Excellence's (NICE) recent …
March 22, 2024 by John Marrin
Further to our previous article on the publication of the phase 3 EPIDYS trial positive results for Givinostat, a histone deacetylase (HDAC) inhibitor …
FDA Approves Givinostat for the Treatment of Duchenne Muscular Dystrophy in the USARead More
March 21, 2024 by John Marrin
We are thrilled to announce exciting new developments regarding the investigational drug Givinostat, after Italfarmaco S.p.A. announced today that the …
March 5, 2024 by John Marrin
PepGen, a biotech company developing innovative oligonucleotide therapies for severe neuromuscular and neurological diseases, has received approval …
PepGen Receives UK CTA Clearance from MHRA to Begin CONNECT2-EDO51 Phase 2 Clinical TrialRead More
February 29, 2024 by John Marrin
PTC has provided a community statement regarding the recently decision by the CHMP/EMA to not renew the marketing authorisation for Translarna …
Action Duchenne
Wellesley House
Duke of Wellington Avenue Royal Arsenal
London
SE18 6SS
07535 498 506
info@actionduchenne.org