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News & social

Lobby for NHS funding for Tranlarna to take place on January 14th

December 12th, 2014

A lobby event to support the call from the Duchenne community for  NHS England to

Summit PLC Receives Regulatory Approval to Initiate a Modified Diet Clinical Trial of SMT C1100 in DMD Patients

December 11th, 2014

On the 11th of December 2014, Summit announced they have received regulatory approval from the

Action Duchenne Northern Ireland Roundtable Meeting 6th December. FULL REPORT

December 11th, 2014

On Saturday 6th December Action Duchenne hosted a roundtable meeting at the Malone Lodge Hotel

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  • Thank you for your support, we hope the concert went well!,
  • Please sign & share petition on Translarna which will be handed in to on 14 Jan over 16000 have signed!,

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Christmas/New Year Opening hours

The Action Duchenne Office will close for Christmas from 5pm on the 19th December and reopen on the 2nd of..

5 hours ago

Thank you to the Tri4James team for the awesome Christmas card!

6 hours ago

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