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News & social

New film from Takin’ Charge Film maker Jordan Samuels

August 28th, 2014

Earlier this summer, the London and South East Takin’ Charge Group and their families went

Sarepta Enters into Partnership with Flagship Biosciences to Digitally Automate the Measurement of Dystrophin, a Key Therapeutic Efficacy Marker for Muscular Dystrophy

August 21st, 2014

Sarepta Press Release New technology designed to speed dystrophin measurement while ensuring consistency Automation of

Prosensa Patient Group Update – PRO044, PRO045, PRO053 and other updates

August 18th, 2014

Prosensa is working towards long-term access to drisapersen Dear Patient Group Representative, As previously communicated,

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FINAL CALL – We have one place left in this year’s Run to the Beat on 14th September in London!

This is a unique race and a great way to raise..

3 days ago

The Action Duchenne International Conference – 7/8th November 2014 – Early Bird Ticket Prices Extended !

We have decided to extend our early..

3 days ago

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