Searching for a cure, Improving lives

Membership

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Join the Action Duchenne Team!

Action Duchenne receive no government funding. All the funds we raise are closely linked to our small but inspiring community; it means people with Duchenne, their families and friends, their colleagues and their schools.

Thanks to their immense support and generosity we are able to do the work we do; searching for a cure, while improving the lives of all those living with Duchenne. Sign up for a monthly direct debit of £5 or more and become a member of Action Duchenne. Monthly donations are absolutely vital to Action Duchenne and every gift makes a huge difference.

Members receive discounted tickets to our annual conference, along with an Action Duchenne pin badge to show their amazing support for our cause!

Your donation will allow us to fund cutting edge research, campaign for better standards of care and access to new treatments for people living with Duchenne, and support education and transition projects for our community.

Thank you so much for your support.

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Support Action Duchenne with a monthly or one off donation

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Events

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Registry

Join the DMD registry for access to clinical trials

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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First draft of agenda announced – Action Duchenne International Conference

June 28th, 2017

We are extremely excited to announce the first draft of the agenda for the Action

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Sarepta announces its partner, Genethon, published new micro-dystrophin gene therapy data

July 28th, 2017

Data show for the first time a systemic therapeutic effect in DMD dogs using a

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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