Searching for a cure, Improving lives


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Join the Action Duchenne Team!

Action Duchenne receive no government funding. All the funds we raise are closely linked to our small but inspiring community; it means people with Duchenne, their families and friends, their colleagues and their schools.

Thanks to their immense support and generosity we are able to do the work we do; searching for a cure, while improving the lives of all those living with Duchenne. Sign up for a monthly direct debit of £5 or more and become a member of Action Duchenne. Monthly donations are absolutely vital to Action Duchenne and every gift makes a huge difference.

Members receive discounted tickets to our annual conference, along with an Action Duchenne pin badge to show their amazing support for our cause!

Your donation will allow us to fund cutting edge research, campaign for better standards of care and access to new treatments for people living with Duchenne, and support education and transition projects for our community.

Thank you so much for your support.


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Join the DMD registry for access to clinical trials


Summit presents data from Phase 1 clinical programme of lead utrophin modulator, ezutromid

June 22nd, 2017

Summit Therapeutics has today announced the presentation of clinical data from two Phase 1 clinical trials

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What Raxone being given approval through the EAMS scheme means for the Duchenne community

June 22nd, 2017

  Over a number of years we have worked closely with Santhera Pharmaceuticals and other

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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