Searching for a cure, Improving lives


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Join the Action Duchenne Team!

Action Duchenne receive no government funding. All the funds we raise are closely linked to our small but inspiring community; it means people with Duchenne, their families and friends, their colleagues and their schools.

Thanks to their immense support and generosity we are able to do the work we do; searching for a cure, while improving the lives of all those living with Duchenne. Sign up for a monthly direct debit of £5 or more and become a member of Action Duchenne. Monthly donations are absolutely vital to Action Duchenne and every gift makes a huge difference.

Members receive discounted tickets to our annual conference, along with an Action Duchenne pin badge to show their amazing support for our cause!

Your donation will allow us to fund cutting edge research, campaign for better standards of care and access to new treatments for people living with Duchenne, and support education and transition projects for our community.

Thank you so much for your support.


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Action Duchenne launches new Research Strategy for Duchenne muscular dystrophy

November 17th, 2017

  Action Duchenne, a leading UK-wide patient and parent-led organisation for Duchenne Muscular Dystrophy, is

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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FDA new approach would reduce number of patients treated with placebo

December 11th, 2017

The U.S. Food and Drug Administration (FDA) has published its recommendation for a new approach

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Results announced from survey ‘Juggling care and daily life’

December 11th, 2017

The 17th October 2017 was an important date for the rare disease community.  The highlights of the

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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