Searching for a cure, Improving lives


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Join the Action Duchenne Team!

Action Duchenne receive no government funding. All the funds we raise are closely linked to our small but inspiring community; it means people with Duchenne, their families and friends, their colleagues and their schools.

Thanks to their immense support and generosity we are able to do the work we do; searching for a cure, while improving the lives of all those living with Duchenne. Sign up for a monthly direct debit of £5 or more and become a member of Action Duchenne. Monthly donations are absolutely vital to Action Duchenne and every gift makes a huge difference.

Members receive discounted tickets to our annual conference, along with an Action Duchenne pin badge to show their amazing support for our cause!

Your donation will allow us to fund cutting edge research, campaign for better standards of care and access to new treatments for people living with Duchenne, and support education and transition projects for our community.

Thank you so much for your support.


Support Action Duchenne with a monthly or one off donation



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Join the DMD registry for access to clinical trials


Summit to Extend Ongoing PhaseOut DMD Clinical Trial of Ezutromid in Patients with DMD

March 27th, 2017

  Introduction from Michelle Avery (Summit Therapeutics): Today, we’ve announced that we intend to proceed

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Amazing London Marathon Dinner at Jamie’s Italian!

February 7th, 2017

  On Saturday 3 February Andrew Parkinson and Andrew Pearson, two of our London Marathon

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Positive Preclinical Research on the Edasalonexent (CAT-1004) Program

January 6th, 2017

  Catabasis announced the publication of preclinical data on the edasalonexent program, a potential disease-modifying

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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