Hear From Our Community

Resilience, care and transformation – end of year reflections from our CEO

December 20, 2023 by Florence Boulton

Resilience, care and transformation - end of year reflections from our CEO As we head towards the bustle and business of the festive season, I am …

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Advocacy and Campaigns: using our experience, voice and resources to make change happen

November 25, 2023 by Lizzie Cox

Advocacy and Campaigns: using our experience, voice and resources to make change happen Written by Kathy Wedell We are pleased to introduce …

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Creating a Shared Vision for Our Duchenne Community – Reflections and Thanks

November 17, 2023 by Florence Boulton

Creating a Shared Vision for Our Duchenne Community - Reflections and Thanks Wow, what an amazing two days we have had together at our Annual …

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The strength of our community

October 6, 2023 by Florence Boulton

The strength of our community As we move towards the last few months of the year, I am so proud of the hard work that is coming to fruition. When …

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My experience as a mentor on the Yes, I Can Residential Weekend

October 5, 2023 by Lizzie Cox

My experience as a mentor on the Yes, I Can Residential Weekend A blog by Benjamin James Recently, I was asked by Action Duchenne to be a mentor …

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Duchenne from the sidelines, a sibling perspective

September 15, 2023 by Lizzie Cox

Duchenne from the sidelines, a sibling perspective Written by Logan Kaye, Duchenne sibling Whenever you hear about a family who has been …

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Supporting families with science

September 5, 2023 by Lizzie Cox

Supporting families with science It's already been 8 months since I joined Action Duchenne as a Science Communications Coordinator – a journey …

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A Postcard from Florence

August 30, 2023 by Lizzie Cox

A Postcard from Florence Florence joined a group of young people and their parents and carers at the Calvert Trust in Exmoor over the August bank …

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July Runner Support Session

July 17, 2023 by Victoria Edwards

We had our second runner support session on Zoom on Thursday 13th July at 7pm. Unfortunately no one was able to attend so we did not record the …

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Summer Fundraising

July 14, 2023 by Lizzie Cox

Summer Fundraising The Summer is a brilliant time to fundraise - the sunshine, longer days and school holidays mean there’s much more scope to get …

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The power of our community

July 12, 2023 by Florence Boulton

The power of our community Our team up and down the country continue to do great job delivering the Science-on-Tour workshops; building contacts …

The power of our communityRead More

Kelly’s Action Duchenne journey so far

June 25, 2023 by KellyAD

Kelly Molkenthin has been with the Action Duchenne team since March. She's sharing a bit more about how she got here, what she's been up to and what …

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