Rare Disease Day meet with PTC

Event Date:

December 5, 2024

Event Time:

7:14 am

Event Location:

Online via Zoom

We’re delighted to offer you, our Duchenne families, the opportunity to join us to mark Rare Disease Day 2021 with an informal meet and greet session with some of the PTC Therapeutics staff.

Here’s what to expect

  • 11.00 – Welcome – Ian Davidson PTC/Florence Boulton, Action Duchenne
  • 11.05 – Who are PTC – Ian Davidson
  • 11.10 – Advocacy update – Sian O’Niell
  • 11.20 – General Q&A
  • 12.00 – Close

How to join the session

Please email Sam via samantha@actionduchenne.org for the joining details.

All are welcome and we look forward to seeing you online!

 

Share this:
  • Online via Zoom

Event Schedule Details

  • December 5, 2024 7:14 am   -   7:14 am
Share This Event
ADD TO YOUR CALENDAR