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Rare Disease Day meet with PTC
Event Date:
June 15, 2024
Event Time:
2:20 pm
Event Location:
Online via Zoom
We’re delighted to offer you, our Duchenne families, the opportunity to join us to mark Rare Disease Day 2021 with an informal meet and greet session with some of the PTC Therapeutics staff.
Here’s what to expect
- 11.00 – Welcome – Ian Davidson PTC/Florence Boulton, Action Duchenne
- 11.05 – Who are PTC – Ian Davidson
- 11.10 – Advocacy update – Sian O’Niell
- 11.20 – General Q&A
- 12.00 – Close
How to join the session
Please email Sam via samantha@actionduchenne.org for the joining details.
All are welcome and we look forward to seeing you online!
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