Action Duchenne works with and liaises closely with a wide range of Biotech and Pharmaceutical companies, working in the field of Duchenne research.
We provide valuable insight into the patient experience and are able to link them to potential trial candidates via our UK DMD Registry. We collect evidence-based testimony from patients and families to assist in the regulatory process.
The annual Action Duchenne International Community Conference is one of the best demonstrations of our work with Pharmaceutical and Biotech companies, where over 550 people (2/3 of which are families) attend to learn about all aspects of Duchenne.
