Grief

Grief is different for everyone.

We are here to help Duchenne families navigate their journey, and we are here for you now.

Please email info@actionduchenne.org or call 07535 498 506 and one of our support team will get back to you.

Bereavement Webinar

Our Support Officers Victoria and Angela talked to Ann Chalmers, Chief Executive of Child Bereavement UK, about bereavement and losing someone to Duchenne and the impact it has on families, friends and those who knew them.

Note: Every effort has been made to discuss this topic in a sensitive and supportive way. If you need support after watching this please do contact us on 07535 498 506

Child Bereavement UK provides confidential support, information and guidance to individuals, families and professionals throughout the UK. You can call their helpline on 0800 02 888 40 or email helpline@childbereavementuk.org

Help Improve Understanding of Nutrition and Weight Management in DMD

Do you have 15 minutes and want to help improve our scientific understanding of the influence of nutrition and weight management in Duchenne muscular dystrophy? This is your chance to get involved and share your experience with researchers at the University of Glasgow and help contribute to better nutritional resources and guidelines for families and …

Welcoming Summer

Welcoming Summer It feels as though we have waited a while for warmer days this year and it is hard to believe that we are already over half way through 2024, and that the school year is coming to an end! As I write, I am aware of the additional challenge that long school holidays …

Fundraising Story – The Glasgow Kiltwalk for Action Duchenne

The Glasgow Kiltwalk for Action Duchenne Written by Sarah Kelly Last month my partner Paul and I took part in the Glasgow Kiltwalk to raise money for Action Duchenne. My little brother Jonathan has DMD, a couple of friends of ours were discussing doing the Kiltwalk and Paul had decided that he was going to …

Bereavement Webinar

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