"I support Action Duchenne because of their continued belief in Research and their involvement at all levels with Children adults and their families. Science will bring us the cure we all desire."

John Miller, Grandparent, Scotland

Action Duchenne has a clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy.

The charity works to deliver the vision through our three core objectives:

  • DEVELOPING EFFECTIVE TREATMENTS FOR ALL by funding research, educating clinicians and researchers, supporting clinical trials and campaigning for access.
  • BUILDING A COMMUNITY by uniting families, educating about Duchenne and raising the profile of the condition to a wider audience.
  • STRIVING FOR A MORE INCLUSIVE SOCIETY by promoting the importance of human equality, day-to-day acceptance of disability and accessibility for those with Duchenne.

Thank you for helping us achieve our vision and deliver our objectives. 

Shelley and your dedicated Action Duchenne team

What is Duchenne?

Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males. It is one of the most severe muscular dystrophies, with muscle weakness appearing in early childhood between the ages of 2 and 5.

How you can help us make the vision a reality

Together with organisations like Action Duchenne our lives are being improved - Levi de Bilde (Parent)