I support Action Duchenne because of their continued belief in Research and their involvement at all levels with Children adults and their families. Science will bring us the cure we all desire - John Miller, Grandparent, Scotland

We want a world where people's lives are no longer limited by Duchenne and Becker muscular dystrophy.

When Action Duchenne was founded in 2001, the average life expectancy for a young person living in the UK with Duchenne was late teens. It is now 27.

We have brought about real change to people living with Duchenne.

But we would like to achieve even more for the community.

To achieve our vision we need to;

  • fund more cutting edge research to treat and cure Duchenne

  • ensure that every person living with Duchenne has access to the best possible care

  • make sure there are treatments available for everyone living with Duchenne, regardless of age, mutation type, location or personal circumstances

  • make sure everyone living with Duchenne has the opportunity to achieve their personal aspirations.

Find out what we are doing to make our vision a reality?


How you can help us make the vision a reality

Together with organisations like Action Duchenne our lives are being improved - Levi de Bilde (Parent)

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