I support Action Duchenne because of their continued belief in Research and their involvement at all levels with Children adults and their families. Science will bring us the cure we all desire - John Miller, Grandparent, Scotland

Action Duchenne fund cutting edge technology and clinical trials into potential treatments to benefit everyone living their lives with Duchenne and Becker muscular dystrophy. We campaign for equality for people with disabilities and provide life lines through our support for families.

Thank you for helping us change the future.

Our vision

We want a world where people's lives are no longer limited by Duchenne and Becker muscular dystrophy.

When Action Duchenne was founded in 2001, the average life expectancy for a young person living in the UK with Duchenne was late teens. It is now late 20's.

We have brought about real change to people living with Duchenne.

But we would like to achieve even more for the community.

To achieve our vision we;

  • fund more cutting edge research to treat and cure Duchenne

  • ensure that every person living with Duchenne has access to the best possible care

  • make sure there are treatments available for everyone living with Duchenne, regardless of age, mutation type, location or personal circumstances

  • make sure everyone living with Duchenne has the opportunity to achieve their personal aspirations.

Find out what we are doing to make our vision a reality?

What is Duchenne?

Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males. It is one of the most severe muscular dystrophies, with muscle weakness appearing in early childhood between the ages of 2 and 5.

How you can help us make the vision a reality

Together with organisations like Action Duchenne our lives are being improved - Levi de Bilde (Parent)

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