Last Friday, Lynnette Ellison our Community Fundraising & Marketing Officer presented Duchenne from a Parent’s Perspective to healthcare officials in Wigan.
Lynnette supported the Sales family at the meeting and together they shared first-hand knowledge into life with Duchenne, the importance of effective diagnosis procedures and how this can pave the way for the family’s journey thereafter.
The aim of the meeting was to influence a change in the diagnosis procedure and ensure families receive the appropriate levels of support upon diagnosis.
“The presentation was very well received. The audience gave feedback that they learned a great deal from the meeting and gained a rare insight into our perspectives as parents. Louise and Kieron did exceptionally well, facing their diagnosis journey and explaining how it has affected them. I feel so privileged to be able to help change the future for other families receiving their diagnoses and to blaze a trail for support, knowledge and a more human touch with healthcare professionals”.
Lynnette Ellison
If you would like support in your diagnosis journey, please get in touch with us info@actionduchenne.org or take a look at the support pages on our website.
Gene therapy trial update from Solid
