• affects about 2,500 people in the UK
  • has no cure, and the only treatment is effective in only 13%
  • caused by mutations that stop production of a vital muscle protein
  • first appears early in life and is usually diagnosed around 4 years old
  • causes the muscles to weaken and waste away over time
  • reduces life expectancy to around 30 years of age

Messages of support from our Patrons Harry Hill & Helena Bonham Carter

“Join me in supporting Action Duchenne on World Duchenne Awareness Day 2020. They are an inspiring and focussed organisation (I’m a Patron so have seen first hand their impact!) making the future brighter for the 2,500 children, young people and adults who live with Duchenne muscular dystrophy in the UK.” – Harry Hill

Please support Action Duchenne as we mark World Duchenne Awareness Day. I am a proud Patron of this wonderful charity which works tirelessly to support the 2,500 children, young people and families across the country who are living with Duchenne muscular dystrophy.

– Helena Bonham Carter

Helena Bonham Carter
Please donate now

What your donation could mean

  • £20 Could pay for a newly diagnosed family to receive an initial support telephone call and vital information pack.
  • £50 Could fund one full hour of research.
  • £100 Could contribute to bringing a Duchenne science event to our families across the UK
  • £500 Could help us develop and deliver a support and education webinar

Thank you for supporting us on World Duchenne Awareness Day 2020.

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