Searching for a cure, Improving lives

About us

Action Duchenne has a team of 10 permanent staff dedicated to meeting the main challenge set by our founders Dr Janet Hoskin and Nic Catlin : To be a leader in supporting innovative research to cure and treat Duchenne.

Working out of a community Centre in Leytonstone, the team is split into fundraising, research, campaigning, education and the duchenne muscular dystrophy registry.

The team is overseen by its trustees: each trustee (with one exception for our legal representation on the board) is a mum, dad, aunt, uncle or grandparent of someone living with duchenne.  This composition driven again by our founders desire that the Charity is to be led by parents and young people affected by Duchenne and Becker Muscular Dystrophy.

Action Duchenne works across the UK, the EU, the US and the southern hemisphere seeking answers and support from all parts of the duchenne community: researchers, clinicians, physicians, pharmacological companies and other duchenne charities.  In doing so, we may not know all of the answers for you…….but we will know who get the answer from.

So please, if you need answers, call or contact us on any of the phone numbers or e-mails you can find on our site.  If you’re not sure who to direct you enquiry to, then please email us at info@actionduchenne.org and one of the team will get back to you.

We are all here to help you, to help us, to find a cure for Duchenne.

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Events

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Registry

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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First draft of agenda announced – Action Duchenne International Conference

June 28th, 2017

We are extremely excited to announce the first draft of the agenda for the Action

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Sarepta announces its partner, Genethon, published new micro-dystrophin gene therapy data

July 28th, 2017

Data show for the first time a systemic therapeutic effect in DMD dogs using a

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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