Duchenne muscular dystrophy (DMD) is a rare inherited progressive muscle wasting condition. It is the most severe muscular dystrophy, with muscle weakness appearing in early childhood between the ages of 2-5 and many of those with Duchenne losing the ability to walk in early adolescence. Duchenne affects around 1 in 3,500 male births worldwide, with around 2,500 people living with Duchenne in the UK.

Becker muscular dystrophy, a less severe form of Duchenne, occurs when dystrophin is produced, but not in the normal form or amount. Due to the difference in the severity of the different forms of these disorders, we will refer to Duchenne throughout this site.

Young men with Duchenne typically live into their late 20’s, however life expectancy is improving all the time as standards of care and knowledge about duchenne improve, with some men living into their 30’s, 40’s and even beyond. In the light of this, DMD Pathfinders, a user-led organisation has been founded to promote choice, control and quality of life for teenagers and adults with Duchenne in the UK.