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  • Challenge 79 for World Duchenne Awareness Day
  • About Us
    • Our vision
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Mental Health Awareness Week 2025
    • Science on Tour
    • Support Calendar – What’s On
    • Support for you and your family
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • SAVE THE DATE for the Action Duchenne Annual International Conference 2025
    • Highlights from the Annual Action Duchenne Annual International 2024
    • Annual International Conference 2023 Video Recordings
    • Annual International Conference 2022 Recordings
      • Adults with Duchenne
      • Growing up with Duchenne
      • The Duchenne Journey
      • What is new in Duchenne research?
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us
    • Help Make a Life Beyond Duchenne Possible – Every Month
    • Fundraising Events and Challenges
    • Take on a challenge for Duchenne
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#shareyourhero and be #strongforsamson

#shareyourhero and be #strongforsamson

You are here: Home / Appeals introduction / #shareyourhero and be #strongforsamson

Do you have a real-life hero? Let them and others know – share your hero now

Ever since our son Samson was diagnosed with Duchenne muscular dystrophy back in October 2015, we’ve made it our goal to ensure we are doing absolutely everything we can to help Samson and other people living with Duchenne. We have immersed ourselves in the community, learning as much as possible to make Samson’s life the best possible. We raise the profile of Duchenne through our Strong for Samson initiative and relentlessly fundraise for Action Duchenne.

Needless to say, Samson is our hero. A brave little 6-year-old boy who, despite his condition, never lets anything faze him and remains funny, kind and loving.

Now, the word ‘hero’ is one that’s often thrown around when people are describing their favourite celebrities, sports personalities or similar. And while these individuals may indeed be heroes to their followers, many other real-life heroes are often left unsung.

We want to send a message out to our supporters, friends and beyond that you haven’t got to be a celebrity, famous, or a film star to be a hero. We want to acknowledge and celebrate everyday heroes. We’ve come up with an idea based around people sharing their stories about genuine, everyday heroes in their lives. These heroes can be anyone who’s inspired you, helped you, been an influence in your life or simply someone who you want to champion.

For example, Samson’s dad, Lex, says: “When my Grandad was alive, he never judged me and always welcomed me with open arms despite sporting a blonde mohican, ripped jeans and piercings. I never got the chance to say how important he was and remains to me. Unfortunately, he passed away when I was travelling in Australia in my early 20s. He will always be my hero, a simple, home-loving gentleman who made such an impact on my life.” 

Here’s how you can get involved with #shareyourhero:

  1. Create a video telling your hero WHY they are your hero and the impact they have had on your life – here’s an example to give you some ideas
  2. Share the video on your wall using the  the hashtags #shareyourhero and #strongforsamson
  3. Tag other people in your post who you think should share their heroes too

Don’t worry if you can’t make a short video or get a picture of you and your hero together to share online, simply spread the love and appreciation by saying thank you to them in a social post. Tell them what they mean to you and thank them for everything they’ve done for you – don’t forget to include the hashtags!

So, If you’ve got a true hero in your life (or maybe more than one!?) and you want to shout their praises from the rooftops, this is your opportunity to do so.

Get in touch with us now and get involved with the Share Your Hero initiative. Telling someone how much they mean to you and how they’ve positively impacted your life is a wonderful gift to give.

follow Strong For Samson 

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