Launching Riley’s film on Rare Disease Day

That’s when it hits you. Riley can’t run, he’ll never be able to do that.

Lyndsey Kaye, Duchenne Mum

At 2 years old, Riley was diagnosed with Duchenne muscular dystrophy, a severe muscle-wasting condition.

We are proud to share this moving and uplifting film about Riley and his family to help raise the profile of Duchenne muscular dystrophy on Rare Disease Day 2022.

You can get involved by sharing this film across your networks and supporting the vital work Action Duchenne is doing to help Duchenne families across the UK.